Disability studies and justice
The scholarship that supplies the models, and the accounts of ableism and of participation that the design work rests on.
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Book
Oliver, M. (1990). The Politics of Disablement. Macmillan.
Used forThe foundational statement of the social model, and the premise on which a barrier is treated as a property of the environment rather than of the person.
Where it is contestedShakespeare (2013) argues that strong formulations sever disability from the body entirely, and so cannot account for impairment effects that persist once barriers are removed.
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Book
Shakespeare, T. (2013). Disability Rights and Wrongs Revisited (2nd ed.). Routledge.
Used forThe standard critical reassessment of the strong social model, and the source of the interactional position the resources take.
Where it is contestedCritics within disability studies argue that the reassessment concedes ground to individualised accounts of disability while the political work of the social model is unfinished.
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Article
Retief, M., & Letšosa, R. (2018). “Models of Disability: A Brief Overview.” HTS Teologiese Studies / Theological Studies, 74(1).
Used forA short comparative overview of the models, used as the reference for the models group in the glossary.
Where it is contestedA summary rather than an original analysis; each model receives a brief treatment and the comparison is not systematic.
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Book
Dolmage, J. T. (2017). Academic Ableism: Disability and Higher Education. University of Michigan Press.
Used forLocates ableism in the architecture, admissions practices and routine habits of higher education rather than in individual attitude.
Where it is contestedThe claims about institutional structure are argued from example and from rhetorical analysis, and the evidence base is North American.
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Book
Titchkosky, T. (2011). The Question of Access: Disability, Space, Meaning. University of Toronto Press.
Used forExamines how institutional language positions access as an exceptional request rather than an ordinary condition of participation.
Where it is contestedThe method is interpretive analysis of institutional discourse, which yields readings of how access is spoken about rather than findings about what institutions do.
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Book
Kafer, A. (2013). Feminist, Queer, Crip. Indiana University Press.
Used forA political and relational account of disability that treats imagined futures as contested ground, used where cure narratives shape institutional expectations.
Where it is contestedThe argument is developed through feminist and queer theory and offers little that translates directly into institutional procedure.
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Book
Charlton, J. I. (1998). Nothing About Us Without Us: Disability Oppression and Empowerment. University of California Press.
Used forThe source of the participation principle that sets the threshold for co-design and consultation.
Where it is contestedThe cross-national evidence rests on interviews conducted in the early 1990s, and the movement it documents has since been criticised from within for centring white activists.
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Book
Goffman, E. (1963). Stigma: Notes on the Management of Spoiled Identity. Prentice-Hall.
Used forExplains why people who are entitled to an accommodation decline to request one, which is the basis for designing out the disclosure requirement.
Where it is contestedThe 1963 framing treats stigma as something the individual manages, which places the labour of concealment with the person rather than with the institution producing the stigma.
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Guidance
United Spinal Association. Disability Etiquette: Tips on Interacting with People with Disabilities.
Used forPractical guidance on interaction, used in the etiquette and communication resource.
Where it is contestedPractitioner guidance from a single United States organisation, not peer-reviewed, and a list of tips can substitute a script for the judgement it is meant to support.
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Book
Sins Invalid (2019). Skin, Tooth, and Bone: The Basis of Movement is Our People — A Disability Justice Primer (2nd ed.). Berkeley, CA: Sins Invalid.
Used forThe source text of the ten principles of disability justice, and the account of how the framework was built through performance, mutual aid and community organising rather than in the academy. The primary reference for the disability justice resource.
Where it is contestedWritten as a primer for political education, so it sets out positions rather than arguing them against a literature. The objection raised from inside the movement is that institutions adopt the principles as language while leaving the anti-capitalist and leadership commitments aside, which Milbern named access washing.
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Framework
Berne, P., & Sins Invalid. 10 Principles of Disability Justice (2nd ed.). Design by Nomy Lamm. Sins Invalid.
Used forThe ten principles in their published form, cited where a resource refers to a specific principle rather than to the framework as a whole.
Where it is contestedA statement of position rather than an argument, and it is written to be read alongside the primer. Taken on its own it is often reduced to a list, which is the use the primer was written to prevent.
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Article
Mingus, M. (2011). “Access Intimacy: The Missing Link.” Leaving Evidence, 5 May 2011.
Used forThe naming of access intimacy: the difference between access that has been arranged and access that has been understood. It is the standard the partnership resource is reaching for, and the reason a compliant environment can still be exhausting to move through.
Where it is contestedPublished on the author’s own blog rather than in a peer-reviewed venue, and the academic literature taking the concept up remains sparse. It is cited far more often than it is examined, which is a fact about the field rather than about the essay.
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Article
Milbern, S. P. (2019). “On the Ancestral Plane: Crip Hand Me Downs and the Legacy of Our Movements.” Disability Visibility Project, 10 March 2019. Reprinted in A. Wong (Ed.), Disability Visibility: First-Person Stories from the Twenty-First Century (Vintage Books, 2020).
Used forCrip ancestorship, and what passes between generations of disabled organisers when many of them do not live long. Read for why a practice names who it inherited from.
Where it is contestedAn essay, not a framework. It does not set out to generalise, and reading it as method mistakes what it is. The anthology reprint is the more stable citation; the original sits on a blog whose archive has been reorganised.
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Book
Clare, E. (2015). Exile and Pride: Disability, Queerness, and Liberation. Duke University Press. Originally published 1999.
Used forDisability, queerness and rural class experience held together rather than treated as separate axes. One of the earlier texts the disability justice collective drew on, by a member of it.
Where it is contestedMemoir and essay, so it supplies experience and vocabulary rather than a framework that can be applied. Clare’s later work revisits several of its positions, so it should not be read as his settled view.
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Book
Moore, L. F., Jr., McClung, N. A., & Nusbaum, E. A. (2017). Black Disabled Art History 101. Xóchitl Justice Press.
Used forBlack disabled artists and their history, by a co-founder of Sins Invalid and the founder of Krip-Hop Nation. The entry point to the Black disability studies strand that the disability justice resource names and does not itself carry.
Where it is contestedWritten for children and short by design, so it introduces rather than documents. Moore’s Black Disabled Ancestors (Poor Press, 2020) and the Krip-Hop graphic novel carry more of the same material at length.
Law, rights instruments and governance
Canadian statute and case law, the international and regional instruments, and the information-governance and research-ethics rules that bound practice.
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Case lawOpen access
British Columbia (Public Service Employee Relations Commission) v. BCGSEU, [1999] 3 S.C.R. 3, 1999 CanLII 652 (SCC).
Used forThe unified bona fide requirement test, and the authority for accommodation to the point of undue hardship.
Where it is contestedCommentators have observed that the first two steps are treated as readily satisfied in practice, so the analysis rests almost entirely on the third.
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Legislation
Human Rights Code, R.S.B.C. 1996, c. 210. Province of British Columbia.
Used forThe operative statute in this jurisdiction. Section 8 covers services customarily available to the public, which is the provision education falls under; section 13 covers employment.
Where it is contestedEnforcement is complaint-driven, which places the work of initiating on the person already facing the barrier.
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LegislationOpen access
Accessible Canada Act, S.C. 2019, c. 10.
Used forThe federal barrier-removal framework, and the source of the broad statutory definition of a barrier used throughout the resources.
Where it is contestedIt reaches federally regulated entities only, so most post-secondary institutions in Canada fall outside its scope.
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Legislation
Accessible British Columbia Act, S.B.C. 2021, c. 19. Province of British Columbia.
Used forThe provincial framework requiring prescribed organisations to maintain an accessibility committee, an accessibility plan and a public feedback mechanism.
Where it is contestedIt requires planning and consultation rather than outcomes, and prescribes no technical standard against which a plan can be assessed.
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LegislationOpen access
Americans with Disabilities Act of 1990, as amended, 42 U.S.C. § 12101 et seq.; Rehabilitation Act of 1973, Sections 504 and 508, as amended.
Used forThe comparison jurisdiction, and the origin of the procurement expectations that reach Canadian institutions through United States vendors.
Where it is contestedUnited States law with a different remedial structure. It does not apply in Canada, and reasoning transplanted from it can misstate the Canadian duty.
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InstrumentOpen access
United Nations (2006). Convention on the Rights of Persons with Disabilities (CRPD).
Used forThe rights framework above the domestic statutes, and the source of the obligation to consult disabled people through their representative organisations.
Where it is contestedImplementation depends on domestic law, and the Committee's concluding observations are not enforceable against a state party.
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InstrumentOpen access
United Nations (1948). Universal Declaration of Human Rights.
Used forThe instrument the later disability-specific instruments build on, used for historical framing.
Where it is contestedA declaration rather than a treaty, and disability is not among the grounds it names.
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Instrument
World Intellectual Property Organization (2013). Marrakesh Treaty to Facilitate Access to Published Works for Persons Who Are Blind, Visually Impaired or Otherwise Print Disabled.
Used forThe instrument that makes accessible-format copies lawful to produce and to move across borders, which is what governs alternative formats of published course materials.
Where it is contestedEffect depends on ratification and on the domestic copyright exception enacted, so coverage differs between countries.
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Instrument
European Union (2012). Charter of Fundamental Rights of the European Union, 2012/C 326/02.
Used forThe regional instrument behind European accessibility obligations, cited where EU standards are compared with Canadian ones.
Where it is contestedIt binds EU institutions and member states implementing EU law, so its relevance in this work is comparative only.
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Legislation
Freedom of Information and Protection of Privacy Act, R.S.B.C. 1996, c. 165. Province of British Columbia.
Used forGoverns what a British Columbia public body may collect, use and disclose, which is what constrains what faculty may be told about a student's accommodation.
Where it is contestedIt sets limits on disclosure without specifying what an accommodation process should record, so practice varies between institutions under the same statute.
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PolicyOpen access
Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council, & Social Sciences and Humanities Research Council (2022). Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans — TCPS 2 (2022).
Used forThe governing research ethics policy in Canada, and the basis for consented, compensated and scoped participation in user evaluation.
Where it is contestedWritten for research, so its provisions map imperfectly onto usability evaluation and consultation, which frequently fall outside the definition of research requiring review.
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Case law
Central Okanagan School District No. 23 v. Renaud, 1992 CanLII 81 (SCC), [1992] 2 S.C.R. 970.
Used forThe Supreme Court of Canada’s statement that accommodation is a shared duty. Employer, union and the person seeking accommodation each carry obligations, and a person who refuses a reasonable proposal may discharge the other party’s duty. The legal ground under the interactive process resource.
Where it is contestedThe decision does not settle how much a person must disclose before the duty is triggered, and later tribunal decisions have had to supply that. Read together with Meiorin, which supplies the analysis for the requirement itself.
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Legislation
Accessibility for Ontarians with Disabilities Act, 2005, S.O. 2005, c. 11.
Used forIncluded for comparison with the federal and British Columbia instruments. It established a standards-based framework across several areas of daily life, with a stated target of an accessible Ontario by 1 January 2025, and it is the Canadian statute most often cited in guidance written elsewhere.
Where it is contestedIt creates no obligation outside Ontario, and guidance written against it circulates nationally as though it did. Progress against the 2025 target is assessed by the independent reviews the Act itself provides for, not by the Act.
Standards, assistive technology and design
The technical standards digital work is assessed against, the frameworks for assistive technology decisions, and the design traditions upstream of them.
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StandardOpen access
W3C (2023). Web Content Accessibility Guidelines (WCAG) 2.2. W3C Recommendation.
Used forThe criterion-level standard digital content is assessed against, and the basis of every conformance position in the resources.
Where it is contestedConformance is assessed criterion by criterion and does not establish that a task can be completed; the W3C states that evaluation tools cannot determine conformance on their own.
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StandardOpen access
ETSI/CEN/CENELEC (2021). EN 301 549 V3.2.1: Accessibility Requirements for ICT Products and Services. Harmonised European Standard.
Used forThe standard adopted in Canada without modification as CAN/ASC-EN 301 549:2024, extending beyond web content to hardware, software, documents and support services.
Where it is contestedV3.2.1 incorporates WCAG 2.1, so the adopted Canadian standard sits a version behind current WCAG.
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InstrumentOpen access
Information Technology Industry Council. Voluntary Product Accessibility Template (VPAT) and Accessibility Conformance Reports.
Used forThe procurement instrument that records conformance criterion by criterion, and the document a vendor accountability process asks for.
Where it is contestedReports are completed by the vendor, and nothing in the format requires that an independent evaluator produced or checked them.
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Standard
CSA Group. CSA B651: Accessible Design for the Built Environment. Canadian Standards Association.
Used forThe Canadian technical standard for physical space, used where a learning environment is in a room rather than on a screen.
Where it is contestedIt specifies dimensional and technical requirements and does not reach the social and procedural conditions that determine whether a compliant room is usable.
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Book
Cook, A. M., & Polgar, J. M. (2015). Assistive Technologies: Principles and Practice (4th ed.). Elsevier.
Used forThe HAAT model, which frames an assistive technology decision as a relationship between person, activity, technology and context.
Where it is contestedWritten for rehabilitation practice, so its unit of analysis is one person's setup rather than the cohort a course has to serve at once.
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Framework
Zabala, J. S. (2005). Ready, SETT, Go! Getting Started with the SETT Framework.
Used forSequences assistive technology decisions so that the tool is selected last, after student, environments and tasks have been described.
Where it is contestedA practitioner framework developed for K–12 special education in the United States, without published empirical validation of the sequence it prescribes.
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ReportOpen access
World Health Organization & UNICEF (2022). Global Report on Assistive Technology. World Health Organization.
Used forThe global evidence on need and unmet need for assistive products, used where the scale of the gap is at issue.
Where it is contestedEstimates are assembled from modelled and self-reported data of uneven quality across countries, so the global figures carry wide uncertainty.
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GuidanceOpen access
Inclusive Design Research Centre. The Inclusive Design Guide. OCAD University.
Used forThe source of one-size-fits-one and of designing with rather than for, which is the framing the partnership resource uses.
Where it is contestedA practitioner guide rather than a research output, and its claims are not accompanied by outcome evidence.
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Framework
Connell, B. R., Jones, M., Mace, R., Mueller, J., Mullick, A., Ostroff, E., Sanford, J., Steinfeld, E., Story, M., & Vanderheiden, G. (1997). The Principles of Universal Design, Version 2.0. Center for Universal Design, North Carolina State University.
Used forThe seven principles, and the origin of the vocabulary that Universal Design for Learning later borrowed.
Where it is contestedFormulated for physical products and environments. The principles were not derived for learning and transfer to it by analogy rather than by evidence.
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Standard
ISO 14289-1:2014. Document Management Applications — Electronic Document File Format Enhancement for Accessibility — Part 1: Use of ISO 32000-1 (PDF/UA-1). International Organization for Standardization.
Used forThe specification for accessible PDF, and the definition of the tagged structure that assistive technology needs in order to read a document in the order it was written. The technical reference under the document accessibility resource.
Where it is contestedSold rather than published openly, which limits who can consult the thing they are being asked to conform to. Conformance is also structural rather than experiential: a file can satisfy the specification and still be hard to use.
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Guidance
W3C (2015). Media Accessibility User Requirements. W3C Working Group Note, 3 December 2015.
Used forCaptions, transcripts, audio description and sign translation set out by user need rather than by technique, which is what makes it useful for deciding which of them a given piece of media actually requires.
Where it is contestedA Working Group Note rather than a Recommendation, so it carries no normative weight, and it has not been revised since 2015. Its account of live and automated production predates current practice.
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Standard
CAN/ASC-EN 301 549:2024. Accessibility Requirements for ICT Products and Services (EN 301 549:2021, IDT). Accessibility Standards Canada, published 31 May 2024.
Used forThe National Standard of Canada for accessibility in information and communication technology, published free of charge in both official languages. The Canadian reference point for platform and procurement questions.
Where it is contestedAn identical adoption of the 2021 European text, so it carries WCAG 2.1 Level AA rather than 2.2, and a later European revision will change what it means without the Canadian designation changing. It is voluntary unless a regulation, policy or contract refers to it.
Universal Design for Learning
The framework itself, in the versions the resources cite.
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FrameworkOpen access
CAST (2024). Universal Design for Learning Guidelines, version 3.0.
Used forThe operative version of the framework, and the structure the UDL branch of the resources follows.
Where it is contestedPublished by the organisation that developed the framework, and version 3.0 postdates the evidence base, which was collected on earlier versions.
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Book
Meyer, A., Rose, D. H., & Gordon, D. (2014). Universal Design for Learning: Theory and Practice. CAST Professional Publishing.
Used forThe book-length statement of the theory, used where the framework's reasoning rather than its checkpoints is at issue.
Where it is contestedKing-Sears et al. (2023) report a moderate positive combined effect of g = 0.43 across 20 studies, and reviews consistently note variable study quality and inconsistent operationalisation of what counts as a UDL intervention.
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Book
Rose, D. H., & Meyer, A. (2002). Teaching Every Student in the Digital Age: Universal Design for Learning. ASCD.
Used forThe original statement of the framework and the source of its three-principle structure.
Where it is contestedThe mapping of the three principles onto recognition, strategic and affective brain networks is offered as a rationale rather than as a tested mechanism, and later CAST publications rely on it less.
Learning design, assessment and pedagogy
Backward design, validity theory, the learning sciences, motivation, and the pedagogy the equity-centred resources draw on.
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Book
Wiggins, G., & McTighe, J. (2005). Understanding by Design (Expanded 2nd ed.). ASCD.
Used forBackward design, used to hold outcomes, evidence and instruction in alignment so that flexibility can be added without loosening what is assessed.
Where it is contestedA planning heuristic rather than a tested intervention; its wide adoption in practice is not matched by direct experimental evidence for the framework itself.
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Article
Messick, S. (1995). “Validity of Psychological Assessment: Validation of Inferences from Persons’ Responses and Performances as Scientific Inquiry into Score Meaning.” American Psychologist, 50(9), 741–749.
Used forThe unified account of validity, which is what makes an inaccessible assessment a measurement problem rather than a fairness courtesy.
Where it is contestedThe unified framework is difficult to operationalise, and in practice it is frequently reduced to a checklist of evidence types rather than an argument about an inference.
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Book
Mayer, R. E. (2009). Multimedia Learning (2nd ed.). Cambridge University Press.
Used forThe evidence base for presenting multimedia so that it does not impose load unrelated to the material.
Where it is contestedMuch of the evidence comes from short laboratory studies with undergraduate participants, and generalisation to full courses and to disabled learners is not established.
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ReportOpen access
Bransford, J. D., Brown, A. L., & Cocking, R. R. (Eds.). (2000). How People Learn: Brain, Mind, Experience, and School (Expanded ed.). National Academy Press.
Used forThe consensus synthesis on learning, transfer and the development of expertise.
Where it is contestedPublished in 2000, and several of the areas it summarises have moved substantially since; a successor volume was issued in 2018.
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ArticleOpen access
Ryan, R. M., & Deci, E. L. (2000). “Self-Determination Theory and the Facilitation of Intrinsic Motivation, Social Development, and Well-Being.” American Psychologist, 55(1), 68–78.
Used forAutonomy, competence and relatedness, used where learners attend by choice and engagement cannot be assumed.
Where it is contestedThe three needs are inferred constructs, and their measurement varies enough across studies that effect sizes are not straightforwardly comparable.
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Book
Wenger, E. (1998). Communities of Practice: Learning, Meaning, and Identity. Cambridge University Press.
Used forExplains how practice changes through participation rather than through instruction, which is the basis of the capacity-building work.
Where it is contestedThe concept was developed descriptively and has been criticised for being applied prescriptively to groups assembled by an institution, which are not the communities the book describes.
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Book
Knowles, M. S., Holton, E. F., & Swanson, R. A. (2015). The Adult Learner (8th ed.). Routledge.
Used forAndragogy, used for its assumptions about self-direction, prior experience and readiness in adult cohorts.
Where it is contestedHartree (1984) argued that andragogy lacks an epistemological base and that its assumptions read as prescriptions for what an adult learner should be; the empirical support is thin and the adult–child distinction is not well established.
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Book
Kirkpatrick, D. L., & Kirkpatrick, J. D. (2006). Evaluating Training Programs: The Four Levels (3rd ed.). Berrett-Koehler.
Used forA shared vocabulary for talking about evaluation with institutional stakeholders who already use it.
Where it is contestedHolton (1996) argued that the four levels form a taxonomy of outcomes rather than a model, because the causal relationships between levels are assumed rather than specified or tested.
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Article
Ladson-Billings, G. (1995). “Toward a Theory of Culturally Relevant Pedagogy.” American Educational Research Journal, 32(3), 465–491.
Used forCulturally relevant pedagogy, used in the equity-centred design resource where accessibility and cultural responsiveness meet.
Where it is contestedDeveloped from a study of eight teachers of African American students in one United States district; extension to other populations and settings requires argument rather than assumption.
Institutions, change and knowledge use
Why capability built in a workshop does not reach practice, and the frameworks used to close that distance.
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ArticleOpen access
Michie, S., van Stralen, M. M., & West, R. (2011). “The Behaviour Change Wheel: A New Method for Characterising and Designing Behaviour Change Interventions.” Implementation Science, 6:42.
Used forCOM-B, used to establish whether a gap between accessibility knowledge and accessible practice is capability, opportunity or motivation before anything is designed.
Where it is contestedCOM-B organises determinants rather than predicting which intervention will work, so the diagnosis it supports does not by itself select a remedy.
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Book
Kotter, J. P. (1996). Leading Change. Harvard Business School Press.
Used forA vocabulary for institutional change that senior stakeholders already share, used for communication rather than as a method.
Where it is contestedAppelbaum et al. (2012) found the model derives from Kotter's own practitioner observation and that no formal study validates the eight steps as a whole.
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Book
Pfeffer, J., & Sutton, R. I. (2000). The Knowing-Doing Gap: How Smart Companies Turn Knowledge into Action. Harvard Business School Press.
Used forFrames why faculty development changes what people know without changing what they build, which is the problem the capacity resource addresses.
Where it is contestedThe evidence is corporate case material selected to illustrate the argument, and the mechanisms proposed were not tested against alternatives.
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Article
Graham, I. D., Logan, J., Harrison, M. B., Straus, S. E., Tetroe, J., Caswell, W., & Robinson, N. (2006). “Lost in Knowledge Translation: Time for a Map?” Journal of Continuing Education in the Health Professions, 26(1), 13–24.
Used forThe knowledge-to-action cycle, used for moving published method into institutional practice.
Where it is contestedDeveloped in health services, where a defined practice community and an identifiable clinical decision exist; teaching has neither in the same form.
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Book
Senge, P. M. (1990). The Fifth Discipline: The Art and Practice of the Learning Organization. Doubleday.
Used forSystems framing for institutional change, used where a barrier recurs because the structure producing it was never addressed.
Where it is contestedThe five disciplines are presented as an integrated account but have not been validated as one, and the book is practitioner literature rather than research.
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Framework
Association on Higher Education And Disability (AHEAD). Program Domains, Standards, and Performance Indicators.
Used forWhat a disability resource office is for, what it is accountable for, and how such an office assesses its own practice. Used as the description of the professional function that this practice defers to rather than performs.
Where it is contestedWritten for the United States, where the framework is the ADA and Section 504 rather than provincial human rights legislation and a statutory duty to accommodate. The functions transfer; the accountability structure does not.
Health, equity and population data
Classification, prevalence, health disparity and the social determinants that situate disability alongside other structural conditions.
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StandardOpen access
World Health Organization (2001). International Classification of Functioning, Disability and Health (ICF). WHO.
Used forThe standard vocabulary for describing functioning in relation to a context, and the basis for reasoning from functional impact rather than from diagnosis.
Where it is contestedCriticised for a classification complex enough to impede implementation, and for a structure that some argue reinstates a clinical frame under a biopsychosocial name.
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Report
World Health Organization & World Bank (2011). World Report on Disability. World Health Organization.
Used forThe first global synthesis of prevalence and barriers, cited for historical framing.
Where it is contestedPublished in 2011 and superseded in several respects, including the headline prevalence estimate, which later WHO reporting revised upward.
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Report
World Health Organization (2022). Global Report on Health Equity for Persons with Disabilities. World Health Organization.
Used forThe current global estimate and the health-equity framing used where disability is situated as a population-level concern.
Where it is contestedPrevalence estimates depend on the instrument used to identify disability, so the figure is not directly comparable with national survey figures.
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Data
Statistics Canada. Canadian Survey on Disability.
Used forThe national source for Canadian prevalence and for the barrier types disabled Canadians report encountering.
Where it is contestedDisability is identified through a screening question set, so the resulting figure reflects that instrument's definition and cannot be set beside figures produced by other national surveys.
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Article
Krahn, G. L., Walker, D. K., & Correa-De-Araujo, R. (2015). “Persons with Disabilities as an Unrecognized Health Disparity Population.” American Journal of Public Health, 105(S2), S198–S206.
Used forThe argument that disabled people constitute a health disparity population, used in the health and patient education resource.
Where it is contestedUnited States data and United States policy context; several of the disparities identified are mediated by insurance arrangements that do not exist in the same form in Canada.
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Article
O’Brien, K. K., Bayoumi, A. M., Strike, C., Young, N. L., & Davis, A. M. (2008). “Exploring Disability from the Perspective of Adults Living with HIV/AIDS: Development of a Conceptual Framework.” Health and Quality of Life Outcomes, 6:76.
Used forThe episodic disability framework, and the basis for designing for conditions that fluctuate rather than persist at a constant level.
Where it is contestedDerived from one condition and a small qualitative sample, so extension to other episodic conditions proceeds by analogy.
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Article
Nutbeam, D. (2000). “Health Literacy as a Public Health Goal: A Challenge for Contemporary Health Education and Communication Strategies into the 21st Century.” Health Promotion International, 15(3), 259–267.
Used forHealth literacy as an outcome of education rather than a fixed attribute of a patient, used in patient and public education work.
Where it is contestedThe three-level model is conceptual, and the measurement of health literacy remains contested, with instruments capturing reading and numeracy more readily than the critical level the model describes.
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Report
Meeks, L. M., & Jain, N. R. (2018). Accessibility, Inclusion, and Action in Medical Education: Lived Experiences of Learners and Physicians with Disabilities. Association of American Medical Colleges.
Used forLived experience of disabled learners and physicians, and the treatment of technical standards in clinical education.
Where it is contestedUnited States medical education, where accreditation requirements and the drafting of technical standards differ from Canadian practice.
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Report
WHO Commission on Social Determinants of Health (2008). Closing the Gap in a Generation: Health Equity Through Action on the Social Determinants of Health. World Health Organization.
Used forSituates disability alongside the other structural conditions that distribute health, which is the framing the health resources use.
Where it is contestedPublished in 2008, and its recommendations are addressed to states, so they translate only indirectly into what an institution can decide.